Meaningful letters to his daughter.
The illness had helped him and his wife realize what mattered most in life. “Our whole understanding of [life] changed,” she said, “things just started to mean more.” Cherishing life, love and every moment they spent together as a family was important.
Thomas had always been an optimistic person and was driven to find the humor in everyday life while focusing on the things they had and the things they could do together.
Maybe my legs don’t work anymore, but I can make my daughter laugh.
That’s when Ben told Jena he wanted to write letters to his only daughter Emmerson. She loved the idea.
“Ben has so much personality. I think his perspective as a father and his love for Emmerson is just overwhelming.” she said.
In the letters, he talked about ALS, but focused more on all the little things he’d cherished. Jena shared “he talked about little things that happened that day, ‘Emmerson you did this today. You’re crawling. This is the word you said.’ It just made him so happy.”